We recommend a variety of internal and external resources for patients in the Aerodigestive Center and their families:
- Feeding Matters: an organization devoted to promoting awareness of pediatric feeding disorders
- Feeding Tube Awareness Foundation: a support organization that also raises awareness of tube feeding
- Family TIES of Massachusetts: a support network for families of children with special needs
- Family Resource Centers of Massachusetts: a statewide network of community-based providers offering multicultural parenting programs, support groups, early childhood services, information and referral resources, and education for families
- The Oley Foundation: an organization aimed at enriching the lives of those living with home intravenous nutrition and tube feeding through education, advocacy, and networking
The modified barium swallow study: What's it like?
This test can help clinicians determine whether a child is aspirating, or inhaling food or liquid into their lungs.
- Catastrophic Illness Relief Fund for Children in Massachusetts: provides financial assistance to qualified families caring for children with special health needs and disabilities
- First Hand Foundation: [rovides funding for individual children with health-related needs when insurance and other financial resources have been exhausted
- United Healthcare Children's Foundation: helps families gain access to care through medical grants
- Health Well's Pediatric Assistance Fund: provides financial assistance to eligible families of critically ill children
The social worker on your child's care team can help if you need assistance in any of the following areas:
- resources for coping with chronic illness, managing pain, stress and anxiety, sibling support, or post-partum depression
- resources related to housing, legal matters, food, finances, respite, transition planning into adulthood, LGBTQ issues, or immigration
- resources for educational needs (including advocacy and assistance with IEP/504 plans and bullying)
For detailed information about visiting Boston Children's Hospital and other available resources, visit our Patient Resources page.