Patient Resources | Overview
When your child is diagnosed with a complex esophageal or airway disorder, your questions and concerns can sometimes feel overwhelming. At Boston Children's, our approach to treatment is more than medical and surgical care. It's also education and support for your entire family.
We hope you find these resources helpful in preparing for your visit and understanding the journey ahead.
External resources
Please note that neither Boston Children's Hospital nor the Esophageal and Airway Treatment Center at Boston Children's unreservedly endorses all of the information found at the sites listed below. These links are provided as a resource.
- Bridging the Gap of EA/TEF: a family-to-family support and resource network
- EA/TEF Family Support Connection
Coping and support resources
No parent wants their child to be ill, and it's important to remember that you aren't alone. There's a lot of support available here at Boston Children's for you and your family, and here are some of the ways we can help:
- Patient education: From the office visit to pre-op to the recovery room, the nurses in the Esophageal and Airway Treatment Center will be on hand to walk you through your child's treatment and help answer any questions you may have. They will also reach out to you by phone, continuing the care and support you received while at Boston Children's.
- Parent to parent: Want to talk with someone whose child has been treated for an esophageal or airway disorder? We can often put you in touch with other families who have been through similar experiences and can share with you their experience at Boston Children's.
- Social work: Our clinical social workers have helped many other families of children with esophageal and airway disorders. Your social worker can offer counseling and assistance with issues such as coping with your child's diagnosis, stresses relating to coping with illness, and dealing with financial difficulties.